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I can still remember, as if it were yesterday, sitting across from a doctor at the hospital while he told us it was time for Jody to list for new lungs. Those statistics were so daunting. As each year passed we celebrated the milestone and I secretly counted down the years until he would reach five years post. Having reached the five year mark is no guarantee for another year but my understanding is that it generally means less chance of rejection and overall longer survival rates. While these meds are necessary and have worked well for him, they come with big side effects. The list could go on and on.
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He is still very sleepy but is finally starting to feel a little better. He is to avoid public places. I pray that God would continue to protect him from the germs that surround and that the upcoming winter would be just as awesome for our family as the summer has been. Carol Attached Thumbnails. Two years!?!? It was sad to see him give up the things he loves: woodworking, yard work, volleyball, etc. It has been pure joy to watch him blossom over this past year. A few weeks ago I had a friend ask me if I had any blog posts planned. She looked to be about my age. Jody still received IV fluids overnight to help improve his kidney function but at least he no longer needed to be hooked up to the heart monitor nor receive multiple laxatives throughout the night. Jody seemed to be going downhill fast so we were glad to get him treatment and boy did that Ribavirin knock the virus right out of him! I cannot imagine how difficult it would be to juggle our life today if Jody were sick and living in and out of the hospital.
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I worried that her strep might have returned since she had just finished her antibiotics a few days prior. Our daughters barely remember life when Jody was sick and this, in and of itself, is beautiful. CF Wife. These were quite painful for him following transplant so we hoped they can be avoided. Hand, feet and thoracic cramps the thoracic cramps are painful to watch Hand shakes they never stop moving Bruises easily he barley touches something and a big bruise appears Memory loss Hair loss The list could go on and on. However, it is important to answer these questions honestly in order to avoid being banned from the chat. Extracted sternal wires. You can make use of various free chat platforms or opt to sign up for a Cfwives platform. Over the next day and a half Jody was well medicated and gradually weaned off the oxygen and chest tube. The location of the small pieces and the degree of scarring between the lungs and chest wall would determine the level of difficulty in removing the pieces.
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